Peggy O’Neill’s restaurant is hosting For the Love of Lola Lee, a fundraising event for Lola Lee Perez on Saturday, Oct. 13, 3 to 9 p.m. Lola Lee Perez died Sept. 11, 2012. She was 2 years old. She was diagnosed this year with Alpers’ Syndrome, a fatal disease that afflicts infants and children.
PALM HARBOR - Peggy O’Neill’s restaurant is hosting For the Love of Lola Lee, a fundraising event for Lola Lee Perez on Saturday, Oct. 13, 3 to 9 p.m.
Lola is a victim of POLG1, Alper’s Syndrome, a genetic disease with no known cure. She passed away on Sept. 11 at 9:30 p.m. All money raised will go directly to help the family of Lola Lee Perez with medical and related expenses. Lola is the granddaughter of John and Danita Beck (Beck Graphics) of Palm Harbor and niece of business owner Don Hurt (Your Claim to Frame).
Activities include a dunk tank, face painting, 50/50 Raffle, Lucky Number Balloon Sale and Silent Auction. The Palm Harbor Fire & Rescue will be there. Live entertainment by: Cory McHugh, Between Bluffs, Bambooda, Freelow, The Love Tribe, Shoeless Soul, Robert & Mary Sutherland, Noah Broe & the Groove Company.
This is the family’s tragic story.
Lola Lee was born a beautiful, seemingly healthy baby on Dec. 22, 2009 in Oldsmar. She is the little sister of 7-year-old Benny Perez, and the second child of Valorie and Ben Perez.
This young couple thought they had their perfect family. Their son, Benny, is a bright, handsome, active boy who plays soccer and loves the Tampa Bay Rays. After many years, a precious baby girl, Lola, with dark brown eyes and a smile to make you melt was born.
On March 2, 2012, Ben went into Lola’s room and discovered that she was having a seizure. Rushed by ambulance to All Children’s Hospital and admitted to ICU, Lola was placed into a comatose state in order to stop the three-hour seizure. After six weeks of testing and retesting, it was determined that Lola is a victim of the genetic disease POLG1, with Alpers Syndrome.
Lola lost her eyesight. Valorie had to give up her career to be with her daughter every day, all day. Ben, a Commercial Airline Pilot, was only recently called back to work after being laid off for 2 years. Financially this has taken a toll on his family.
Donations may be sent to: Ted Friedinger, 1114-B Florida Avenue, Palm Harbor, FL 34683 made payable to “Lola Perez.”
Alpers’ Syndrome is a disease of the central nervous system that occurs mostly in infants and children. There is no cure for Alpers’ Syndrome and, currently, no way to slow its progression.
The prognosis for individuals with Alpers’ Syndrome is poor. Those with the disease usually die within their first decade of life.
Peggy O’Neill’s is located at 1026 Florida Ave. in Historic Downtown Palm Harbor. Call 787-7734.